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Bone Marrow Transplant – What the Media and Medical Profession Do Not Want You To Know!

After I was diagnosed in January 1989, the medical profession tried their best to use me as a guinea pig. I believe they do this because they know you are in shock and very vulnerable. At age 29 and three small children I was definitely in shock. The doctor who diagnosed me said I would be dead in 3 to 3 and a half years. The fear was overwhelming and I know now that I was incapable of making a rational decision. I decided to put off a BMT and keep my options open.

Finally, at the age of 35, I decided to have the BMT. My family members were tested and luckily I had two siblings who were both perfect matches. A BMT is not a surgical procedure, but a medical procedure that is non-invasive but very intensive. I along with nine others started the procedure on the same day they did. We received three days of what they call lethal chemotherapy and then four days of total body radiation. The only way to describe what they do to you is that they kill you and then they do their best to try and not only revive you, but to keep you alive for as many years afterwards as possible.

Call me the lucky one, but the other nine BMT recipients started dying almost immediately and by the end of the first year there were only three of us left. And in the next six months, the other two succumbed to the BMT. Once you have a BMT, the leukemia is never the cause of death. The number one cause of death after a BMT is graft vs host. Graft vs host is where your new bone marrow sees all these foreign organs and objects in your body and tries to eliminate them. Remember that you have the donor’s bone marrow inside you and the bone marrow sees your body as completely foreign. The doctors try hard to help the bones adjust, but it’s usually a losing cause. I’m not absolutely sure, but my guess is that all the other nine people lost their lives to the battle going on in them because of graft vs host.

After having the BMT I was tested several times to see if I had graft vs host but I never did. I happened to have and contracted almost every other ailment and ailment possible, but I survived and am currently doing well. Life was very different from what I expected. At 53 years old, I still can’t work a full-time job. Chemotherapy and radiation do things to the body that the doctors are still looking for answers to.

To give you a brief idea of ​​what I have been through – I have had pneumonia 15 to 20 times and each time was a hospital visit of 2 weeks on average. I got shingles over 10 years ago and still suffer from it. I have had cataract surgery on both eyes. A month or two after the BMT my weight dropped down to 114 pounds – and at 6′ 2″ I have very little meat on my body. In addition to having no hair anywhere, I was a rack of bones wrapped in skin and I could barely walking At my house I had to crawl up the stairs to the bedroom because I couldn’t stand on my feet for very long, I had a double hernia operation and several other painful ailments that still seem to linger.

I still have problems with my weight so the doctors have given me a medication to increase my appetite so I can gain weight. It took me about 2 years to finally get to 150 pounds, but today I have gained a lot more weight due to the medication and am at almost 200 pounds. This is about the perfect weight for my body.

To this day, my main problems are severe fatigue and terrible problems with digestion. But, at least I lived and have seen all four of my children grow and become adults. I currently have 3 grandchildren and 2 great grandchildren in the oven. Life isn’t necessarily great, but I do know it could be a lot worse.

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